"M.E CFS service in Fife"

About: NHS Fife

(as the patient),

A move of house and of GP brought fresh eyes on the symptoms which I had repeatedly brought to the doctor's office and I was referred to Keith at the ME/CFS specialist clinic at Ladybank. The appointment allowed me space and time to present in context symptoms/periods of illness from Glandular fever as a teenager to shingles as an adult. I felt listened to and understood, and didn't feel I had to 'prove' my illness as I had before.

My appointments ran for less than a year, maybe 8 in total, gaining info on vitamins and supplements, effective use of pacing, positive thinking and living, support and practical advice with employment issues, and understanding of Inflammatory response/muscle weakness and fatigue - all of which have allowed me to get on with life. The benefit of these appointments will last a lifetime.

A shorter waiting time for initial appointment would be marvellous, especially since those referred have often been unwell for several years. I hope this valuable and specialist service remains and can grow.

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Responses

Response from Louise Ewing, Patient Relations Manager, NHS Fife

picture of Louise Ewing

Dear tonktonk

Thank you for taking the time to tell us about your experience. It must be so difficult feeling that you have to prove your illness and so refreshing to meet with some one who takes the time to listen and understand. It sounds like Keith provided you with information and advice that was really tailored to what mattered to you and this is the approach we want staff to use with every patient every time.

I note your comment about the initial waiting time and will make sure that your comments are passed on along with the positive, which will be a great boost to the Service. Thanks you for taking the time to share.

Regards

Louise Ewing

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