"Transvaginal Mesh"

About: John Radcliffe Hospital / Urology Queen Alexandra Hospital / Urology

(as the patient),

I had TVT surgery for SUI in March at Portsmouth hospital. When I woke from the anaesthetic I was in terrible pain and unable to pass urine. The pain did not improve and I had to self catheterise. I suffered from recurrent UTI's, pelvic pain, dyspaurenia and haematuria. In June an attempt was made to cut the sub urethral portion of the tape but I suffered anaphylaxis and respiratory arrest on induction of anaesthesia so the operation was cancelled. The anaphylaxis was attributed to the cocktail of analgesia I was taking post TVT surgery and worsening of pre existing asthma. Eventually the sub urethral portion of the tape was removed using spinal anaesthesia in July. I was able to pass urine but the terrible pelvic and suprapubic pain continued with recurrent UTI's. I lived on antibiotics. I researched the net to find a surgeon who could remove all the mesh and found Natalia in Oxford. I paid to see her privately and she agreed the mesh needed removing. I also joined a support group on FB called Sling the Mesh and Natalia was highly thought of among this group. I finally had the TVT removed on 19 months after my initial surgery at the John Radcliffe Hospital in Oxford by Natalia. The care at the hospital was outstanding and the whole team professional at all times. The anaesthetist was fantastic and put me at ease from the outset. Natalia was able to remove all the mesh. Currently there are only 2 surgeons in England who have the necessary skills to remove mesh. As a result waiting times are long and women are suffering. She is a talented surgeon with a kind and understanding bedside manner. She has given me my life back. I can't thank her or the staff at the John Radcliffe hospital enough for helping me.

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Responses

Response from Debra Johns, Patient Experience Officer, Portsmouth Hospitals NHS Trust

Dear Sera I am sorry to learn of the problems you have experienced. It is apparent from your comments that this is a very specialised procedure. I am pleased to note that you have now had a positive outcome. Please be assured that your comments have been shared with the Urology Department at Queen Alexandra Hospital. Should you ever need to share your views with us directly, good or bad, then please contact our PALS Team at PHT.PALS@porthosp.nhs.uk or via the free phone on 0800 9176039 who will be happy to help and advise. Kind regards. Debbie

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Update posted by Sera (the patient)

Dear Debra

Thank you for your response. My post was mainly directed to the John Radcliffe hospital because as you rightly say it is a very specialised procedure and only 2 surgeons in England are currently able to remove it. I would however like to say I can't fault the care I've received from Claire Burton at QAH and she did everything she could to help me. My concern is for the women who are still having this mesh fitted as many complications go unreported to the MHRA and the pain and suffering is life changing. In Scotland all mesh procedures are currently suspended pending further investigations into the terrible injuries inflicted upon women. My hope is that England will follow suit. I'm very lucky to have found Natalia price in oxford. I'm now mesh free but a full recovery is unlikely

Response from Queen Alexandra Hospital

I am sorry to learn of the problems you have experienced.

It is apparent from your comments that this is a very specialised procedure.

I am pleased to note that you have now had a positive outcome. Please be assured that your comments were shared with the Urology Department at Queen Alexandra Hospital when they appeared on Patient Opinion in September.

Should you ever need to share your views with us directly, good or bad, then please contact our PALS Team at PHT.PALS@porthosp.nhs.uk or via the free phone on 0800 9176039 who will be happy to help and advise.

Kind regards.

Debbie

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