"Urology Consultants - beyond the pale"

About: Southampton General Hospital

I have been having ongoing issues with the Urology Department - trying to schedule catheter changes, as I have an indwelling catheter in my mitrofanoff stoma. I have yet, in the past 18 months, to go 8 weeks before *I* I have ring Urology to remind them that it is time for a catheter change. I have ended up in A&E three times in the past 13 months because the Urologists do not schedule the catheter changes in a timely manner.

Don't even get me started with A&E - I've had a couple nurses who were pretty good, but overall my experience has been lacklustre. Because I have a bladder issue I'm not considered a priority - because it's just a bladder, nothing major. Even though with multiple surgeries I am very much at a higher risk of bladder rupture, but that too isn't taken seriously.

Today, after multiple conversations with Patient Support Services & the Urology Department itself in the past 3 months, I have discovered that yet again the Urologists have made a unilateral decision to not schedule me for a catheter change - as they are working under an assumption that I will transfer my care to London. I will and that is my plan, but until the entire fiasco around my bladder tumour has been dealt with (another issue) I need SUHT to actually do the catheter change. These need to be done every 7-9 weeks, and if I were to transfer to London it would take longer than 5 weeks (which is when I'm due) to get to see a new consultant.

I would highly recommend that if you have any major chronic condition which requires careful maintenance & care by a competent consultant, go elsewhere. SUHT is not a centre of excellence. Go to London if you can.

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Response from Southampton General Hospital

We are very sorry to read of your continued issues with the Urology Department and that the Patient Support Services have not been successful in helping you resolve them. Please contact the Patient Support Services Team for further assistance. email: patientsupportservices@uhs.nhs.uk telephone: 02381206325

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