"When you get a positive test result -..."

About: Medway Maritime Hospital

First visit - Doctor asked why I had been referred to haematology not neurology. Apparently my blood test results were not bad enough for me to suffer any symptoms. But as I was there they did take blood for a specialised test.

When I went back for the results all the Doctor kept saying was 'I'm sorry'. They went on to say the test result came back positive for the JAK2 mutation, Told me I was at high risk and when asked for information about the diagnosis I was told that they didn't have any but I could Google it. Not the best way to find out you have a form of blood cancer!

The Doctor wrote to my GP saying that it was a possible diagnosis - I was to have regular blood tests (not how regular) and if my count goes above I was to have chemotherapy.

How to feel bewildered, confused and out on a limb where nobody wants to help!

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Responses

Response from Medway Maritime Hospital

We are sorry to hear your story and are keen to understand more in order to find out what happened and why, so that we ensure this doesn't happen again. If you'd like to assist us in this please contact Simon Weeks at Simon.Weeks@medway.nhs.uk

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