"Lack of communication and trust"

About: Pinderfields General Hospital / Paediatric neurology

(as a parent/guardian),

See 1st Dr in afternoon, nice, thorough etc. Except not Dr we went to see as he swapped his shift. Getting answers not easy. Nurses distressed toddler immensely doing obs and still persisted even though BP 180/110 (should be 80/40). Kept overnight.

2nd Dr didn't do test 1st Dr said to do in night. In morning, 3rd Dr didn't do tests 1st Dr said would do that day. Upshot: very distressed toddler; 14 weeks to see consultant we went in specifically to see & 6 weeks for test supposed to be done whilst admitted. Some tests not to be done at all now.

Communication? Clearly don't know the meaning of the word. Trust? When each Dr doesn't do what last one said was happening.... Absolutely shocking. Still no closer to diagnosis.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Paul Jepson, Patient Liaison Manager, Mid Yorkshire Hospitals NHS Trust

Dear Angry-mother

We are sorry to hear that your experience was so disappointing. We would be pleased to arrange for he matter to be investigated if you would like to contact us directly with the appropriate details.

The contact email address is pals@midyorks.nhs.uk

  • Angry-mother doesn't think this response is helpful
    {{helpful}} of {{totalOthers()}} other people think it is helpful

Response from Pinderfields General Hospital

we would be pleased to arrange for this matter to be investigated if the family would like to contact us directly with the appropriate details.

  • Angry-mother doesn't think this response is helpful
    {{helpful}} of {{totalOthers()}} other people think it is helpful

Update posted by Angry-mother (a parent/guardian)

I suppose that I should thank you for your responses, however I am sceptical of your reasons. What on earth do PALS do? From experience, absolutely nothing. What is the point of even wasting my time?

It has now been 4 weeks since my daughter was hospitalised. I have a discharge letter stating she would have an EEG within 6 weeks - still no appointment letter!!! I was told at discharge that the appointment had actually been made but for bureaucracy reasons I couldn't be told when but I would be sent a letter...

I do have a letter to see the consultant, ten weeks after we were initially supposed to! Absolutely shocking. We were explicitly told we would have the EEG before the consultant since we'd already seen a paediatrician and the consultant would order an EEG which would delay the EEG further - but you went and changed your minds again without consultation!

My toddler daughter is having absence seizures several times a day. They are leaving her distressed. It is heartbreaking to watch. Meanwhile, her communication is coming on leaps and bounds and she is complaining daily about her head and eyes hurting. But it feels like she is not a priority to you. You can't even manage to follow plans that you set out. I have absolutely no faith in you and I feel utterly powerless.

Response from Paul Jepson, Patient Liaison Manager, Mid Yorkshire Hospitals NHS Trust

Dear Angry-mother

Thank you for these further comments. As you will be aware from our correspondence yesterday (3 September), the Trust is taking the matter seriously and has committed to carrying out a formal investigation as per the NHS complaints procedure.

  • {{helpful}} of {{total()}} people think this response is helpful