"It's taken three years to get some closure"
Posted by Ondo Eranza (as ),
I had a brain injury 3 years ago and I saw a neurologist for the first time last month.
I feel I fell through the cracks. I woke up in hospital after being attacked and was referred to a charity. I worked with Headway for 6 months, I had a lot of cognitive therapy, it was great.
It took me some time before I questioned why I hadn't seen anyone in the NHS. It was only through the Dirrans centre that I managed to sort out an appointment.
For three years I've been rattling my brain not understanding what was wrong, I needed information and answers. What is wrong? What can change? What can't change? What can I do to help? It was definitely worth going to the neurologist to get the information, to get some closure. I would have been able to move on quicker if I'd seen the neurologist after my injury as I understand I should have.
I think the issue is communication; there are too many departments with snippets of information and no one is collating it all to see the whole picture.