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"Lack of diagnosis of acute pain which is causing much distress"

About: NHS Ayrshire & Arran University Hospital Ayr / General Medicine

(as a relative),

Referred by GP (who listens and tries to help) to Doctors at Ayr Hospital who have investigated lower right sided abdominal pain by carrying out tests over a long period of time but still unable to diagnose.

Due to inability to get to the source of the problem which is causing acute daily pain and fear of what is causing such symptoms, it has been insinuated more than once that it is not real. The agony and torture experienced is cruel and debilitating and the insensitivity of medical professionals that has been experienced is disgraceful.

From Consultant to a GP. The feeling of helplessness is awful as this is continuing and in fact getting worse. Something is causing this and it seems nobody is listening or trying to help because to date have not been able to diagnose. The terror of not knowing and being left simply to suffer is unbearable.

No longer know where to turn and there is fear that eventually the source of the pain will be found and it could be too late to treat. Have even been told if attending A&E that will be given pain relief then sent home. It appears someone may have put in patient notes that this is in the mind which is absolutely not the case, it is very real to the extent the pain causes life activities to stop and the need to take strong pain relief and go to bed till it eases. So frustrated and do not know where to turn for help anymore.

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Responses

Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran 8 years ago
Eunice Goodwin
Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team,
NHS Ayrshire and Arran

I respond initially to most of the posts and ensure they are passed to the appropriate team whether they are compliments, observations or grumbles. It is important to make sure all issues are addressed and I try to encourage that to happen for all the posts as required.

Submitted on 14/07/2015 at 09:45
Published on Care Opinion at 10:31


picture of Eunice Goodwin

Dear Sarah 1,

You really sound at the end of your tether. I am so sorry that you feel this helplessness and frustration. While you said you don’t know where to turn, thank you for turning to the Po website so we can see what we can do. I am not sure what relative this story is in relation to, but I really would ask you to contact us. You (and the person experiencing this) clearly need to get it sorted out once and for all if we can. If you can give us your contact details and the details of the person in question (date of birth or CHI number and address) we can look into this. You can email me on eunice.goodwin@aapct.scot.nhs.uk or phone me on 01563 826222.

I am so sorry you have been unable to get a diagnosis and feel ‘The agony and torture experienced is cruel and debilitating and the insensitivity of medical professionals that has been experienced is disgraceful’. When we have the details of the patient we will look at this carefully so we can learn from your experience but I think it is important to hear more of your story and to look into it fully so I really hope you do get in touch.

Thank you for contacting us. I do hope we talk soon.

Best wishes,

Eunice

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