About: National Hospital for Neurology & Neurosurgery, Queen Square National Hospital for Neurology & Neurosurgery, Queen Square London WC1N 3BG
Posted by franck baudrillart
I have A.L.S., I requested an emergency prescription of riluzole last week. I was told to come the next day to U.C.L hospital 7th floor at s the stroke unit. This was the wrong information, in fact I should have come to the neurology hospital in Queen square as the U.C.L. didn't store my tablets. Today I am still waiting for an email confirming when I will eventually be told when my riluzole will be prescribed. I am going downhill very quickly, keep falling down, cannot talk, mainly housebound, have problem with my tongue and my swallowing. I have got the feeling that riluzole help me maintain a little bit of assurance.