"Medical outlier on Gynae ward D7 - caused me..."

About: New Cross Hospital

I was a medical outlier on gynae ward 30th November to 18th December 2014. A handful of nurses were lovely but I can't remember there names to write to say thank you. Majority questioned my symptoms. I have ehlers-danlos syndrome hypermobility type and they'd not heard of it. May is EDS awareness Month - they need to be more aware and EDS is a condition often requiring hysterectomy so they should know about it. I had 4 falls. They didn't know how to get me off floor. No evidence of manual handling training. When injured from 2 falls in 24 hours my arms tremored uncontrollably so I couldn't eat or drink or take medication. The nurses signed drugs chart on drugs round but just left them on my trolley for me to look at. It took the matron to discover them and help me. Physios explained the importance of pacing i.e - walking with crutches to or from bathroom but not both ways. When I waited for a chair to take me from the bathroom back to bed I heard a certain nurse say "but she walked to the bathroom ". The last 2 falls I had I'd asked for help but didn't get any. They could have been prevented. They "never" should have happened. Twice I spoke to a bed manager. The one came to see me and agreed it was dangerous for me to remain on D7 and I'd be priority to be moved the next day. 1 week later I was still on D7. The capacity team do not appear to care about a patients safety. They just outlie them anywhere. It wastes so much NHS money forgetting about outliers. The 2nd week I was in I never saw a consultant even after I'd phoned the secretary saying I needed to see the consultant. I've seen a patient given insulin and the breakfast trolley didn't arrive for 1 hour. Also given food but no insulin from pharmacy. It could have caused a fatal hypo or high blood sugars re the latter. The bathroom in my side room had someone else's hair in the plug hole 3 days until I asked a new cleaner when the bathrooms get cleaned. It was supposed to be every day. I shouldn't have had to shower by someone else's body hair. One cleaner broke my drinks bottle and didn't replace it so I still have it with a hole in. Another time the cleaner told a nurse. .. just to let you know, I've mopped in there, "in case er says I ay". I had my eyes shut but wasn't asleep. The nurses said they'd get domestic supervisor down - they never arrived. I also had an ECG done wrong which led to me needing a blood test to see if I'd had a heart attack and another ECG after. Clearly training and competence is an issue. I'd appreciate the details of head of nursing for gynae and head of nursing for AMU. AMU are always really good to me. No problems there and I'd like to thank them. I need assurance I'll never be sent as an outlier ever again.

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Responses

Response from The Royal Wolverhampton NHS Trust

Dear EDSgirl

Thank you for posting your comments relating to your patient experience on Ward D7, I am sorry for any distress that this matter has caused you.

To enable me to look further into your concerns, I would be grateful if you can contact the Patient Advice and Liaison Service (PALS) on 01902 695362 who can assist you further. In the meantime, I will share your comments with the staff involved in your care.

Kindest regards

Carol Bott

Head of Patient Experience and Public Involvement

Response from New Cross Hospital

Thank you for taking the time to post your comments regarding your patient experience in our Gynaecology ward during 30 November to 18 December 2014. I am very sorry for any distress that this matter has caused you. To enable me to look further into your concerns, I would be grateful if you can contact our Patient Advice and Liaison Service (PALS) on 01902 695362 who can assist you further. Kindest regards Carol Bott Head of Patient Experience and Public Involvement

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