"Myelodysplastic syndrome in ward C10"

About: Addenbrooke's Hospital

After being diagnosed on Xmas Eve 2014 in Ipswich I started my journey in Ipswich's wonderful Somersham Ward. I was there for 5 weeks undergoing chemotherapy in preparation for a stem cell transplant in Addenbrooke's. All went well and I was admitted early April 2015 with my youngest sister as my donor. I'm coming up to 5 weeks in and 25 days since my transplant. I could have gone home earlier but a CMV infection is slowing down my exit. The CMV was anticipated by the medical team as both my sister and I were tested as positive for it before I came in. With a bit of luck I'll be sent home in a week or so once they are confident that I'm off IV drips and there is no imminent risk of any other complication. Even then i'll be returning on a weekly basis to both Ipswich and Addenbrooke's for tests and any required transfusions. Bless the day I was admitted to Addenbrooke's and Ward C10. You are closely monitored, kept very well informed, given clear explanations as to the need for medication or other treatments, and treated with great respect. Staff at every level are approachable and professional with a real concern for your well being. That goes for consultants, doctors, nurses, dieticians, admin staff, housekeepers, and cleaners. If you're safe to leave the ward you are encouraged to walk, meet friends and family in the shopping mall and food court area. There are times when this is not advised due to infection risks but I have spent many hours sitting in the sunshine (hat on) with a Costa or Starbucks coffee and a newspaper. Worth viewing the Art Trail if the weather is bad. Due to the distance from home my wife has made use of the hostel accommodation, especially at weekends. Again this is all painlessly organised for you by the ward admin staff. It sounds unthankful to say I hope I never have to be readmitted here but quite the opposite. With MDS the future can be uncertain and if I can avoid another long spell in hospital I will. However, if needs must I know I can be assured of the best possible care at Addenbrooke's Ward C10.

Story from NHS Choices

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Addenbrooke's Hospital

Thank you very much for all your kind words about the care you received from staff on Addenbrooke's ward C10. It is very pleasing to hear that you were looked after so well by a range of staff and they will be very glad to learn that you felt so well cared for, and that you felt the facilities were good. I hope you are keeping well. Patient Advice and Liaison Service

  • {{helpful}} of {{total()}} people think this response is helpful