Took 15 yrs to get this far for mctd/eds diagnosis. In three yrs two visits, got a connective tissue diagnosis. Next visit new doctor. Took one look at my sad emtional state. Sent me for physio and wrote on my notes not connective tissue. Deteriated greatly since and now 20 yrs later, have 3 children identical issues but manage them alone isolated with no diagnosis and limited daily life routine if you can call it that. I dont feel nhs are their for the very vunerable.sorry but I finally asked for help and didnt get it.im 32.
"written off by new consultant"
About: Chapel Allerton Hospital Chapel Allerton Hospital Leeds LS7 4SA
Posted via nhs.uk
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