"Dissapointed and very concerned for other patients..."
About: Leicester General Hospital Leicester General Hospital Leicester LE5 4PW
Posted by Raj Patel
Its been 2 years since i have been off work due to a severe headache, weakness/paralysis problems with balance during attacks and speech disturbance. This has been going on for over two years now. I have recently been discharged with chronic migraines. I made a formal complaint regarding the way i was treated with the chief executive of LRI after numerous admittance. I received no reply to the complaint. Since this time i felt the level of care depleted and i was in the hands of neurology and felt helpless, no matter how many times i have advised them of my condition and the incapacitating experience on daily life seems to be completely ignored. I sent all my letter and results to a private Neurologist who diagnosed that i am experiencing Sporadic Hemiplegic Migraine and that there is a distinct difference from chronic migraines. I can no longer afford to see this neurologist and they advised me to see my GP to arrange a second opinion. I did have a muscle test which showed a difference between right and left and weakness on the left side which is becoming worse.No stoke was identified.This is now affecting my day to day living and i feel incapacitated to go back to work, due to numbness in the left side and disturbed speech and problems with my memory and balance. I really do not know where to go from hear should i write to chief executive who failed to reply last time, await a response for a second opinion which my GP is arranging, or speak to my MP for intervention to highlight the quality of care from this department. All i am wanting is the correct diagnosis and the review of my medication as the private neurologist indicated that the medication i am on is standard issue and may not help me which i agree with as my medication are not helping and i feel i am taking these pills to keep the LGH neurologist happy that hey have done something to sort the problem out. When in realistic terms nothing has changed and i am unable to function in normal daily activities. It will be interesting to see if i get any response from this review.