"rheumatology cant diagnose EDS & ignore..."

About: Chelsea & Westminster Hospital

It was my assumption that rheumatologist were specialist regarding the medicine behind MSK issues yet the "professor" there could not even properly diagnose hypermobility, ignored osteoarthritis in my scan results, failed to even noticed my deformed posture or winged scapula's, and have been telling me my arthralgia is fibromyalgia for over 4 years leaving me with undiagnosed and untreated bursitis, tendonitis, impingement, effusions and fractures whilst telling me I was "borderline" hypermobile then discharging me. When I attempted to question them I was fobbed off, not even being offered physiotherapy for my extremely unstable joints that pop in and out of joint. No beighton or Brighton test was performed prior to my diagnoses four years ago! When I attempted to complain I was fobbed off by the service manager. All in all I am terribly concerned at the level of service at this hospital. If you have long term, disabling joint pain go elsewhere.

Story from NHS Choices

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Response from Chelsea & Westminster Hospital

Hello, We are sorry to hear about your experience. If you wish for the hospital to investigate your concerns, please contact the Patient Advice and Liaison office at pals@chelwest.nhs.uk or the Complaints Team at complaints.team@chelwest.nhs.uk Kind regards, Patient Advice and Liaison Team

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