"Lack of support for my family"
Posted by Disheartened (as ),
My wife was recently moved in to a Nursing Home after spending some three years in two different hospitals following an operation to remove two brain tumours. Although the tumours were found to be benign my wife went on to develop a degenerative brain disorder which has left her unable to communicate with us in any meaningful way. Her condition is undiagnosed and I have been told that it is very likely to remain so. Not having a diagnosis has meant that my wife has received no treatment for almost two years, but has simply had her care managed. I have always felt throughout my wife’s hospitalisation a sense of isolation, particularly the last two years where I feel the medical profession have simply given up on her. This feeling is accentuated with her recent move in to the Nursing Home. It is as though we have been cut adrift from the medical fraternity.
I feel if my wife had a diagnosis there would be some form of monitoring, perhaps a measurement of her degeneration, which could be some kind of indication for her family of what is happening to her. Instead, what we have had over the last few years are doctors, when they speak to us at all, simply asking us if we see degeneration in my wife. As a lay person who visits my wife every day I find it very difficult to attain the level of detachment required to answer this question. This lack of input by the medical profession is indicative of the total lack of support for my family and I over the last few years. I find it very difficult to accept that in Scotland in the 21st century this is acceptable practice.