"Lack of contact from neurophysiology dept"
About: National Hospital for Neurology & Neurosurgery, Queen Square National Hospital for Neurology & Neurosurgery, Queen Square London WC1N 3BG
Posted by John Devane
On Thurs 11th September I was asked to attend an initial consultation at the surgery of the Professor. My twin brother had been referred two weeks previously by his GP - after displaying a dragging gait and hand tremor. We spent three hours undergoing various tests - administered by one of Prof's assistants. The Professor had spoken to both of us to explain that my brother may have a neurophysiological condition - a Parkinson type syndrome was mentioned. As a twin brother - I was asked to assist in research into a diagnosis. I had a blood test and took part in videoed movement trials. My brother was the chief focus as tests - he was taped upto a EMG machine for over an hour. The assistant explained that the purpose of the tests was to collect data on which to make a provisional diagnosis, and explained that the dept would be asking my brother to come in for a dopmine transport scan 'soon'. I asked him for a timescale for these processes - and was told to expected to call us back before Christmas. We left RHNND at 3pm - happy with our 'first step.' Eight weeks later we have had no word from the Prof, or the team. My brother has phoned the Prof's 'secretary' twice - first time - four weeks ago and the secretary said the Prof was 'on holiday' , two weeks ago we were told 'we have sent you a letter.' I am very concerned about the lack of follow up. I have spoken to my brother on the phone. He sounds depressed. He thinks he may have just 'imagined' these symptoms - maybe he has. But the lack of contact has not helped him. I I am extremely disappointed with the level of care provided. John Devane