"TVT surgery "

About: Southern General Hospital / Gynaecology

(as the patient),

Hi had TVT inserted April 2010, woke screaming in pain collapsed in toilet following morning, but sent home anyway.

I had to come back 7 days later to emergency gyn as I was unable to urinate&open Bowels.

I endured an internal ultra sound and internal examination by on call Gyn doctor for which I was told "to stop crying as I was a woman and I was making my pain worse ".

I was sent home with pain meds and laxatives.

I have saw various departments in Southern general Nerve scan Where I was asked why I had a crutch, not to rush to attend my follow up clinical appointment as it would take up to 12 weeks for report to follow on to relevant department, this after waiting just short of a year to see this rude consultant who spent more time talking with his student than answering my questions, urodynamics test.

MRI x 4 New Victoria.

Gartnavel Hospital physiotherapy, Stobhill hospital pain management spinal block, tens machine, acupuncture.

Easterhouse clinic pain management ..... Drumchapel clinic for incontinence clinic.

I had mesh removal in Jan 2013, on the understanding removal may not make my symptoms any better. I'm sorry to say I am now registered disabled, walk with crutch and use a wheelchair for longer times. I am also bowel & bladder incontinent.

I feel let down by NhS Scotland. Trying to get follow up dates at a relevant hospitals/clinics with a consultant who knows you on some level, so we don't have to spend endless time relaying your story to yet another registrar.

We need consultants nurses health practitioners to be mesh aware.

Do you have a similar story to tell? Tell your story & make a difference ››

Responses

Response from Lorna Gray, Patient Experience, Public Involvement Project Manager, NHS Greater Glasgow and Clyde

Dear Scottish mesh survivor 1,

I am very sorry to hear about your experience and the impact this has had on you. A number of other women have also contacted us detailing their similar experiences and I understand that this matter is currently under review by the Scottish Government. You can also make a complaint directly to the clinical department of the hospital where you have been treated.

I understand that additional details about this review will be provided by the Scottish Government, and I hope that this will provide you with further information.

With very best wishes,

Lorna

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Response from Craig White, Divisional Clinical Lead, Directorate of Health Quality and Strategy, Scottish Government

picture of Craig White

Dear SCOTTISH mesh survivor 1,

Thank you for using Patient Opinion to describe the distressing and painful experiences you have had, ultimately associated with such life changing impact for you. I was so sorry to read about this.

As you may know, an Independent Review of surgery using vaginal mesh has been set up by the Cabinet Secretary for Health and Wellbeing. This will examine adverse incidents and effects associated with this treatment. It will have the means both of identifying and determining the causes of issues where this is possible, and finding and implementing solutions.

An Expert Group, chaired by the Deputy Chief Medical Officer has also been set up to consider the issue of synthetic mesh implants in more detail. This Group has met three times and has published a patient information and consent leaflet for the surgical treatment of stress urinary incontinence in women.

This Booklet gives detailed information about the synthetic mid-urethral tape procedure and discusses the intended benefits and risks associated with the insertion of mesh implants. The booklet can be accessed at:

http://www.scotland.gov.uk/Publications/2014/06/2806

The Expert Group is currently developing a patient information and consent booklet for treatment of pelvic organ prolapse. New care pathways are also being developed for management of pelvic organ prolapse and for women presenting with complications.

Discussions are also beginning in respect of the national planning required to reconfigure services to ensure women have access to appropriate clinical expertise and treatment. I appreciate that none of this directly helps you and include this to underline the importance with which the Scottish Government is taking the concerns that have been expressed to date.

Part of the work of the Independent Review is to consider the personal experiences from Scottish women who have had problems as a result of mesh implants. I will make sure that the Deputy Chief Medical Officer arranges for your posting on Patient Opinion to be passed to the members of her Expert Group and that the Chair of the Independent Review is also advised of the details of your experiences.

I know that colleagues in NHS Greater Glasgow and Clyde will want to do all that they can to support you and look forward to reading more about their plans for that in subsequent responses. You must let me know in the meantime if there is anything else we can do to put you in touch with the right help and support.

Yours respectfully,

Craig White

Professor Craig White

Divisional Clinical Lead, The Quality Unit

Scottish Government Health and Social Care Directorates

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