"Unable to access care, help or support"

About: Ailsa Hospital / General Psychiatry Crosshouse Hospital / General Psychiatry

(as a staff member posting for a patient/service user),

From Endofmytether,

My husband struggles to get out of bed or to do anything. Without my coercion he would just sit all day. He can’t be out of my sight. It is so wearing and I am totally worn out. The consultant stated that my husband has mild cognitive impairment. There is no diagnosis of dementia.

My husband had to stop driving as a result of a consultant comment on the letter to DVLA, which was later denied by this consultant. This took the carpet from under his feet. Eventually my husband got his licence back but it took from11/11/11- March 2014) as the consultant was wrong. This had a devastating effect on our lives people kept advising him to do his hobbies but driving was his life.

Our GP suggested getting a second opinion but the consultant we saw was not pleasant. The GP told me that they thought it was scandalous because it took so long to see another doctor (from January to June).

The consultant said how dare I question the other Dr’s advice. I feel the consultant is taking it out on us because we asked for a second opinion about several aspects of my husband’s care. When I was asked what we wanted from the consultation, I said some help the consultant told me there is nothing more they can do for my husband (with no explanation or diagnosis) and they won’t amend his medication although the consultant disagreed with what my husband is on. I am a 74 year old woman and I have never been spoken to like that ever before in my life.

We used to have a CPN (up until February) but we don’t now and his CBT treatment was stopped in May. We have had to go privately for some help and support.

I went to PASS (Patient Advice and Support Service) but I did not want to officially complain because I felt it would affect our future treatment and care.

I went to a meeting in The Park Hotel in Kilmarnock (to a Mental Health event) and I was the only member of the public there. A Psychiatrist was there and she and another interviewed me, took my whole story. It was taped and neither of them could believe it but there was no follow-up after taking my story.

No one has sat down has sat down to find out about this and none is trying to help us. We are only existing, certainly not living. We are both at the end of our tether. I don’t know if there is anything anyone can do for him, but what about us? ?

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Responses

Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran

picture of Eunice Goodwin

Dear Endofmytether,

As you alone will know, we have already had some discussion around your situation and we sincerely wish to help you and your husband. I have referred you to the befriending service to see if this helps you to feel a little less isolated. (I do hope this will be helpful).

The senior nurse in the Elderly Mental Health team would like to meet with you so I will contact you by phone to arrange this if you would like to meet with him.

As you know, I am very sorry you have found this all so frustrating and that you are now at the end of your tether, so I do hope the use of Patient Opinion will bring about the support or care you feel is needed for you and your husband.

Kindest regards,

Eunice

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Response from Eunice Goodwin, Patient Feedback Manager for NHS Ayrshire and Arran, Quality Improvement and Governance Team, NHS Ayrshire and Arran

picture of Eunice Goodwin

Dear Endofmytether,

As you know, we have been in touch several times off line and a meeting has been arranged for tomorrow with Andy Swanson, Senior Nurse (Mental Health). Andy will come and see you and your husband in your home as was your wish. I do hope this will be helpful to both of you.

You have told me you have felt a better knowing that someone has listened and something is being done now, for that I am very glad.

All the very best

Eunice

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Response from NHS Ayrshire and Arran

Dear Endofmytether,

Thank you so much for welcoming Eunice and I into your home on Tuesday. The conversation helped us understand how you and your husband are feeling and enabled us to agree several things that you thought might be helpful.

I was pleased to hear that you have already been contacted by Centrestage Communities and that you will be joining with them on Monday afternoon for some light entertainment. I hope you will enjoy this experience.

Prior to your next appointment in October, I will speak with the Doctor and share your hopes and aspirations for your ongoing care needs. I will also speak with Consultant Psychiatrist and Service Manager about your experience and ensure any learning points are taken forward across the Service.

I was sorry to hear that your journey has been difficult and hope that you feel reassured of our desire to help and support you both.

Regards.

Andy

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