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No specific help for ME

Posted By Rocky Road

"No specific help for ME"

About: Southern General Hospital / Neurology

(as the patient),

It is now twenty years since I was diagnosed. I haven't been offered any ME specific help in that time.

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Responses

Response from Paul Cannon, Head of Administration, Acute Services Division, Greater Glasgow & Clyde NHS 9 years ago
Paul Cannon
Head of Administration, Acute Services Division,
Greater Glasgow & Clyde NHS

Submitted on 18/07/2014 at 16:27
Published on Care Opinion at 17:02

Dear Rocky Road, my apologies for the delay, I had thought that I had posted a response when your posting came in, but I have since been advised to repeat this process.

I was sorry to read that you feel that you have not had any specific ME support, there are a number of self help type groups and I am sure that your GP will be able to recommend one to you. In addition you should know that the Glasgow Centre for Integrative Health, what used to be known as the Homeopathic Hospital, does provide services for ME patients, so that might be an avenue for you to explore with your GP.

I hope this is helpful.

Paul

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful

Update posted by Rocky Road (the patient)

What really baffles me is, that having been diagnosed by a Professor of Neurology and being told that no one has an idea of what causes this illness. I as a diagnosed sufferer have not been followed up and my illness progression followed. How is a cause going to be forthcoming when sufferers who have the best knowledge of the illness are completely ignored?

Update posted by Rocky Road (the patient)

Nearly a year since original post, still not been offered any help.

Only response on here is from acute services, hint, this is a chronic illness...

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