"Help from the Fife ME/CFS Specialist Nurse"

About: NHS Fife

(as the patient),

I have been unwell for nearly four years with ME or Chronic Fatigue Syndrome, an illness for which services in the NHS are extremely rare. We're lucky to have a dedicated Nurse Specialist in Fife and I've relied on his advice and guidance a great deal as my illness has developed and fluctuated. I think he's also been a great help to my GP who is very good but sometimes benefits from the experience that the Specialist Nurse brings. The help isn't just medical: I've had masses of help with insurance and retirement paperwork, which must be a pain for him to complete but he has done so very graciously. My only complaint? We need far more of this sort of thing - ME/CFS is seriously under-resourced, especially when you consider the impact it has on the economy as many patients have to retire in the middle of full and productive careers.

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Response from Louise Ewing, Patient Relations Manager, NHS Fife

picture of Louise Ewing

Dear "Oost"

Thank you for taking the time to share your experience of having access to support from the ME specialist nurse. It is great to hear that he is treating you as a whole person and to hear of your appreciation for that. Having access to such support when living with a condition like ME is essential and I know the nurse concerned will be delighted to recevie your direct feedback.

I will make sure that I share your post with him and also share it with the Management team, to alert them to your positive comments and to enable them to consider your other points.

Thanks for taking the time to give us your feedback about this vital service


Louise Ewing

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