About: Queen Margaret Hospital Queen Margaret Hospital Dunfermline KY12 0SU
Posted by wishiwaswell (as ),
Having my ME nurse has helped me enormously over the last few years.
Being diagnosed after 2 years of tests and not knowing what was wrong was hard. Then when diagnosed there was no real support from GP as they are limited in knowledge and was really treated using medication but there was nobody there to answer my questions. It was scary as I am moderate to severe with ME and was in constant pain, poor balance, migraines as well as fatigue.
People have the knowledge of thinking ME is all about feeling tired all the time but I have so many more symptoms. I saw a consultant and the ME nurse about the same time about 1 year after my diagnosis, after constant requests for help as my GP was not able to help and I had to find this out myself which I think is terrible, the consultant was quite vague in advice whereas my M. E. nurse was so supportive in answering my questions and giving me advice to help me cope with my illness.
It is life changing and without my M. E. nurse I really would be struggling, more money and more M. E. nurses or consultants need to be implemented as this cruel illness is more common than people are aware.