"Fearing for my Daughter’s Life, why is nobody taking me seriously?"

About: Nottinghamshire Healthcare NHS Foundation Trust

(as a parent/guardian),

As a carer and Mother of a daughter who is now age 20 I feel there is a complete lack of understanding from staff about the full impact of borderline personality disorder. My daughter has low self-worth, no friends and an abusive relationship with an older man.

She feels she is treated as a trouble maker from healthcare professionals.

Her condition is now so severe I fear for her life. Since her diagnosis at the age of seventeen she has been subjected to a numerous healthcare professionals. There are too many people involved in her care. I want someone to treat the cause and not the symptoms. Dialectical behavior therapy is not available due to funding or any other suitable therapy such as Mindfulness has not been offered.

My daughter has received services from Childhood and Adolescent Mental Health Services in the past plus the Dual Diagnosis Team at Newark Northgate and Perinatal Psychiatry three years ago.

She has recently seen a psychiatrist through Newark Recovery Partnership with the possibility of yet another healthcare professional being dragged into the mix.

She was offered group therapy at Mandala House in Nottingham in 2013 but due to being unwell could not comply with their rules of attendance and she was discharged leaving us back to square one

What is needed is a structured and therapeutic approach for my daughter but she has been branded as previously mentioned ‘a trouble maker’ and appears to be stigmatised by her diagnosis.

Nobody seems to know what to do to help. I want someone to own the problem as she has been in and out of hospital trying to kill herself on several occasions. She is depressed, self- harming, anorexic and drinking to excess.

This is causing immense strain and stress on me and my family as carer and our daughter’s young son for whom we have a full residents order as she is unable to care for him.

We just want one person to co-ordinate her care work with us who fully understands her symptoms and conditions and works with her and my family.

I want someone to hear what I am saying and resolve it. There are too many opinions not enough action and no relief. My daughter says ‘’I’m a hopeless case nobody is going to be able to help me’’.

As a family we want quality of care for the people we care for. There is an issue with resources. Staff are so stretched they can’t meet our needs and I feel some want to help but are unable. We did, however receive care and compassion from Dr West at Newark Recovery Centre who actually listened and treated us with respect and understanding.

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Responses

Response from Andrea Emmens, Family Interventions Co-ordinator, Adult Mental Health Bassetlaw, Nottingamshire healthcare NHS trust

Thank you so much for taking the time to give your feedback, this is really appreciated.

I am sorry to hear the experiences of your daughter, you and your family. You mention the team in Newark, I will ensure both the team leader and the service manager are made aware of your posting.

If you wish to discuss this further with me please do not hesitate to be in touch, my number is 01909 502025.

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Response from Elizabeth Allcock, Service Development Facilitator , Specialist Services Directorate, Nottinghamshire Healthcare NHS trust

I was very sorry to hear of your experience as a carer and of the very difficult journey you and your daughter have had and continue to face.

It was reassuring to hear you have had a positive experience from Dr West and I will ensure feedback is given. We always appreciate feedback (positive and negative) as it enables us to get a broader understanding of the experience of both our carers and our patients.

As your experience includes services within the Specialist Services Directorate I have responded in addition to Andrea Emmens and would also be very happy to speak with you should you wish to give further information. Or it maybe preferable to you for Andrea and I to liaise so that you don't have to tell your experience again?

If you do wish to speak with me please can you call 0115 854 2283 and I will return your call or you can book a time with Lynda (the secretary) for me to ring you back.

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Response from Andrea Emmens, Family Interventions Co-ordinator, Adult Mental Health Bassetlaw, Nottingamshire healthcare NHS trust

Following on from my initial response I would like to update you.

I have passed on your feedback to the managers. Tracey Houghton, Team Leader for the services in Newark asked that I share her telephone number with you and welcomed you to get I touch at anytime, her number is 01636 670600.

Tracey also requested that I thank you for taking the time to share your story and feedback.

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