"Why is my surgery delayed?"

About: Royal Infirmary of Edinburgh at Little France / Gynaecology

(as the patient),

I was suffering pain constipation and very bad periods, so my GP ordered an ultrasound, and a large fibroid was found. I finally got an appointment with a consultant regarding these results. As soon as I stepped into the consultant's room, I felt uncomfortable and pressured into speaking to a nurse regarding a trial they where doing on effective ways to treat fibroids instead of surgery.

I was put on Esmya and on my second period I bled really badly. I was in agony, so I called the number given to me by the trial nurse but only got voice mail.

Two weeks later, I call the consultant's secretary, who informed me the trial nurse was away and that no one would have listened to the messages! Next I went for an MRI scan and after weeks I had to call the consultant's secretary again, as I had no results and had not heard from the consultant. Weeks later and several calls to secretary again, the consultant finally calls back with a manner that was horrible (especially when I said I didn't want to take part in the trial). I still have no idea about my MRI results.

I finally received a letter saying I'm on the waiting list for surgery. I obviously got excited, as I've been semi house bound since January, only to be disappointed on Saturday when I received another letter saying that my consultant said I wouldn't be available for treatment between my original 12 week dates. I have no idea what is going on and I certainly did not tell my consultant that I'd be unavailable. I'd go in for surgery today if I got the call! I'm at the end of my tether. This emotional roller coaster is sending me to the edge.

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Response from Dougie Brownlie, Patient Advice and Support Service (PASS) Marketing Officer, Citizens Advice Scotland

picture of Dougie Brownlie

Hi Dee Dee1986,

I have seen your post and noticed that there hadn’t been a response as yet by the NHS. I am sorry to read of your experience and that you were upset by the attitude of some of the NHS staff and the confusion regarding surgery dates, so I thought I would let you know about the Patient Advice and Support Service (PASS) which is an independent service which provides free, accessible and confidential information, advice and support to patients, their carers and families about NHS healthcare in Scotland.

You can access this service from any citizens advice bureau in Scotland by going to a bureau in person, or by telephone. The number is in the phone book. You can find more information about the service at www.patientadvicescotland.org.uk

We have specialist advisers in every health board area in Scotland and who will give advice on health related issues including the policies relating to staff attitudes. If required, a specialist adviser can meet you and work with you to draft a written letter to the relevant NHS area which will then raise this issue with the NHS. The adviser can also explain the NHS complaints procedure and support you if you are asked to attend a meeting with the NHS.

Hope this helps

Dougie Brownlie

PASS Marketing Officer

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