"Recurrent Uveitis"

My teenage son has had uveitis on at least 5 occasions now. The first time he had to wait three days for a doctor's appointment and then 3 more days for a clinic appointment despite the fact of a family history of it (me) and the very real danger of permanent loss of vision.

The second time he was given steroids again and no follow up appointment. Being a teenager he did not want to make a fuss or anything but I knew he should not have been just left without a follow up and left on potentially damaging steroids indefinitely! When he eventually got to the GP and back to Raigmore they actually laughed "oh dear - you shouldn't have been on these all this time! " Then the next time he had uveitus - as per the other times, he had to first try and obtain a GP appointment and referral despite time delays causing more damage - Raigmore told him he did not have uveitus.

I was desperate by this time and went to the GP with him - who practically told me to stop being silly and that I should have more confidence in Raigmore's eye clinic! We very luckily could afford to pay to go to Aberdeen and see a top specialist there - who promptly diagnosed uveitus in both eyes and carried out futher tests to find out the underlying cause.

The cause has still not been found and my son has had further bouts of uveitus - treated poorly by Raigmore. I suggest someone so young, with a disease this serious should be followed up, the underlying cause should be found, they should also be able to immediately access the clinic when a flare up occurs and not after days/weeks of GP referral, they should also surely see someone more experienced than a non-trainee or junior and perhaps even a specialist in their disease. Raigmore to my mind at the moment fills me with fear for my son's eye sight!