"Not able to get TNF"
About: Cumbria, Northumberland, Tyne and Wear Cumbria, Northumberland, Tyne and Wear Westmorland General Hospital / Pain Management Westmorland General Hospital Pain Management LA9 7RG Westmorland General Hospital / Trauma and orthopaedics Westmorland General Hospital Trauma and orthopaedics LA9 7RG
Posted by Mothygus (as ),
I guess I'm much like many other sufferers, I do not qualify for anti TNF via the tests required by NICE.
For 10 years I have been on methotrexate and struggled to take the prescribed dose; there is no doubt Mtx works, if I could take 15mg or more I would be in a complete drug induced remission. However, I can only take 10mg because I keep going neutropenic otherwise; with the additional use of meloxicam I keep the pain and swelling to a minimum but despite numerous letters from my GP, the consultant is unmoved. It seems anecdotal incidences of pain and joint stiffness counts for nought, the be all is the NICE test and one has to fail (or pass, I'm not sure which it is) twice in a month and have been on two other drugs.
As a successful artist I pay tens of thousands in tax and vat to the chancellor and if I started mismanaging the disease I could induce a flare up which would result in every synovial joint ceasing to function, but even then if I did it on two occasions I still wouldn't get the anti TNF drug because I think it all boils down to cost.
So what would the government like, tens of thousands in tax from me, or would they like me to stop functioning and painting and for them to support me with benefits?