"Lack of care and compassion"

About: King's College Hospital (Denmark Hill) / Neurology

(as a parent/guardian),

My daughter was admitted in November 2013 to Kings College Hospital London Neuro ICU. She had complex health needs, was 23 years old and ventilator dependent. As her mother I was also her main carer, she was transfered from another hospital as an emergency with a blocked shunt and was unconscious. She went straight to theatre, then to intensive care. She still remained unconscious and prognosis was dire. I was only allowed to visit during the five hours visiting time, despite being with her usually as her carer 24 hours. There were no chairs for visitors, I had to ask for an air mattress for her, this wasn't supplied for 30 hours. We were never spoken to by a senior neurologist, her drain in her head stopped working and I had to ask staff repeatedly to call a doctor. When a junior Dr did eventually come and confirm this they gave us an option of doing nothing about it. On the second day there (my daughters last) I took photographs of her, only to be stopped by a nurse because my daughter hadn't consented! However no one actually asked me about her care or medication or legal status as we parents both had lasting power of attorney. I followed a member of the public in one visiting time and the curtains were drawn around my daughters bed, I went in to find a nurse taking a photograph of my daughters five year old pressure sore, who consented for this to be taken? Her gown that she left her previous hospital wearing was not changed during her two and a half days, she was freezing to touch and when I pointed this out the nurse reluctantly agreed and went to find a bear hugger, coming back to say they were all in use! I slept on a bench in the relatives room for the two nights, only to have the lights put on full and all the windows thrown open by a very rude domestic at 6: 45 am who told me and another relative with a dying husband to get out of the room. Even though my daughter was dying no allowances were made for me to be there, the nurse in charge said they could not set a precedent otherwise all relatives would want to be there. Luckily the Lane Fox unit were happy to have my daughter transferred back to them where she had a dignified death surrounded by staff who cared.

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