"Neurology no diagnosis"

About: Crosshouse Hospital / Neurology

(as the patient),

I have a degenerative progressive neurological problem that first started about 6 years ago. Despite numerous tests the neurologists have been unable to make a diagnosis due to my symptoms being atypical. Latest neurologist said within 5 minutes of first appointment that it was migraine and gave me more medication to take, then said he didn't need to see me any more. Illness continued to progress and GP referred myself back to neurologist. This time I was told it must be function and was sent to see neuropsychiatry that said its organic and would send a report back to neurologist. That was in November and I am still waiting for neurologist to follow up

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Responses

Response from Kate MacDonald, Business Coordinator & Office Manager (interim), Nurse Directorate, NHS Ayrshire and Arran, NHS Ayrshire and Arran

picture of Kate MacDonald

Dear Billya1003

Thank you for getting in touch with us through Patient Opinion.

I was so sorry to read that you have to cope with this degenerative progressive neurological problem, it must be very hard for you, especially when you are now having to wait on the results of the report that was done by neuropsychiatry.

In order for me to assist you and put you in touch with the right people, I will need to get some more details from you.

Can I please ask that you contact me either by email on kate.macdonald@aapct.scot.nhs.uk or by calling me directly on 01292 513607?

I look forward to hearing from you Billya1003.

Kind regards

Kate

Kate Macdonald

Patient Opinion Coordinator for NHS Ayrshire and Arran.

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Response from Kate MacDonald, Business Coordinator & Office Manager (interim), Nurse Directorate, NHS Ayrshire and Arran, NHS Ayrshire and Arran

picture of Kate MacDonald

Dear Billya1003

Thank you for making contact with me and for providing your personal details. I can confirm that I have passed these onto our Health Care Manager, who covers neurology so that they can look into this for you. They will be making contact with you.

In the meantime, my email address and contact number are below if you would like to make contact.

Kind regards

Kate

Kate Macdonald

Patient Opinion Coordinator

NHS Ayrshire and Arran

01292 513607

kate.macdonald@aapct.scot.nhs.uk

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Response from Kate MacDonald, Business Coordinator & Office Manager (interim), Nurse Directorate, NHS Ayrshire and Arran, NHS Ayrshire and Arran

picture of Kate MacDonald

Dear Billya1003

Our Management Lead for Neurology Services has been in contact with me to let me know that she has been in touch with your via email about your appointment.

I understand that you are due to meet with the Consultant Neurologist this week and I just wanted to say that I hope the appointment goes well for you. Please do let us know how you get on.

Take care and kind regards

Kate

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