"mental health care"

About: Northumberland, Tyne and Wear NHS Foundation Trust / Adult mental health

(as the patient),

After some very bad service experiences over several years, I received a very positive service from a nurse and a support worker for just over 6 months. Expecting a "service review" (how are things going - what do we need to do next), I was told management have decided to reorganise the service - but don't worry!

Well I didn't get my service review, my service provision was disrupted, I feel devastated and hopeless and when the new worker was introduced - there will be less service. Even if the amount of care was the same (which it isn't), they don't understand how hard it has been to work with someone to get a working relationship, and to have all that taken away. I feel that it is worse than being back to square one - because even if I put all that effort in again, I have the uncertainty of whether the people are taken away again and the lack of support in the meantime (as the new worker won't understand when I am poorly and what I can't do and they are going to take longer to work that out if they come half as often) and all that time I will be getting worse.

The response will be "I am glad to hear you have received a positive service and we are striving to provide good service etc" - they will ignore the reality of the hopelessness, isolation, abandonment and devastation I feel and the difficulties they create for their workers.

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