"My dear friend who has terminal Leukaemia"

About: Bath, Gloucestershire, Swindon and Wiltshire Gloucestershire Care Services NHS Trust / potentially violent patient scheme (PVP)

(as a friend),

My dear friend is now very unwell with Leukaemia and when last weighed was 3 Stone 4 pounds. She is unable to move from her couch and is in constant pain. Her late husband abused her over many years but was particularly good friends with her GP and discussed her care multidisciplinary care plan before he died of an alcohol related illness. For some reason she has been put on a violent patient scheme but has never been assessed or given any treatment. She now can barely eat and drink and has apparently gastroenteritis although that is not a confirmed diagnosis but I would expect this is a symptom of her illness. Unfortunately it is unlikely she will live a great deal longer.

What is sickening is that her GP refuses to visit her, she has no services or equipment and she is being refused any direct medical assistance and she is powerless to change her GP because of this status she has been given. She is very bright and astute and clearly desperate for some palliative care. A woman who has given her life to helping others should not be treated in this way in her last few weeks or months.

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Response from Ruth Darling, Communications Manager, Gloucestershire Care Services NHS Trust

Thank you for taking the time to get in touch with us, and I apologise for the delay in responding. We're very concerned to read your comments and would like to find out more so that we can investigate this further.

From your description, your main concern is around the care provided by your friend's GP, and having access to other services, such as palliative nursing care. I see that Patient Opinion has 'tagged' your comment to 'Bath, Gloucestershire, Swindon and Wiltshire', part of NHS England, and this is the organisation that is responsible for providing GP services. At the more local level in Gloucestershire, GP services are commissioned by Gloucestershire Clinical Commissioning Group (GCCG).

In your comment, you mention your friend's need for palliative care. As a Trust, palliative nursing care is one of the community health services we provide - usually through a GP referral - and I am unsure if your friend is now receiving this care?

Would you be happy to get in touch with our Patient Advice & Liaison (PALs) team so that we can investigate further? We will be able to help make sure you receive a 'joined up' response to your concerns from other health providers, as well reply to any concerns you may have about our Trust's services. You can contact the team on 0300 421 8313 between 9am and 5pm, Monday to Friday or email: yourexperience@glos-care.nhs.uk.

Please do not hesitate to get in touch if you would like your comments investigated further.

Ruth Darling, communications manager

Best wishes

The team at Gloucestershire Care Services NHS Trust

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