"Wards brilliant - follow up rubbish!!"

Anything else?

After being admitted in November, first to LAMU then on to Falcon ward, I have to say the inpatient facilities are wonderful, food is great, and the nurses caring and considerate. However, after being discharged on 18/11/13, the follow up has been awful. I was put on the maximum dose of steroids and told I would have three appointments, one of which was a biopsy. This has taken place, as has the appointment with the Rheumatology clinic. I was supposed to have a follow up with neurology within three weeks, this did not happen, prompting me to ring on 13th December to query this. I was told nothing had been arranged but on reviewing my notes, was told a note would be put on my file and I would be contacted on 16th December. This has never happened. After my appointment at Devizes, the consultant there was concerned that I had been left on the maximum steroid dosage for so long and suggested I contact my GP to reduce the dosage under his supervision, along with the promise of a letter with her prognosis. My GP is disappointed that we seem to have no information on diagnosis or treatment. I have a very caring employer, but they also need to be kept informed, as do family and friends. I feel totally let down by the system and very much out on a limb. Your opinion on this matter would be much appreciated.