About: The Royal Victoria Infirmary The Royal Victoria Infirmary Newcastle Upon Tyne NE1 4LP
Posted by Karina Ramsey
I was given a tentative diagnosis of acromegaly 14 months ago, have recieved monthly injections for the condition and 7 months ago had a scan which showed bone growth in my skull, according to information from the BMC a typical symptom of the condition, "Acromegaly is a disfiguring and debilitating somatic growth disorder that is characterized by bone and soft-tissue overgrowth". I am in dire pain, cannot sleep yet have been handed over to ENT at the Freeman hospital, who did not send me any information in the lapsing 7 months since they did the scan....I feel like the endocrinology department at the RVI have wiped their hands of me and , as the initial scan may now be out of date, are sending me back to the Freeman this week, for another one...requests for my GP to do blood tests that I have done monthly on ward 51 have baffled me as to their purpose and frankly I am sick of having all requests to discuss a treatment plan ignored, to the point I now am seeking treatment privately abroad and have applied to have my medical records released......disgusted really, 40 years of paying my NI for what exactly? No doubt this will be ignored/lost or completely disregarded too.