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If I could do that I wouldn't be here

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"If I could do that I wouldn't be here"

About: Leighton Hospital / Urology

(as the patient),

I just wanted to share my story!

When you are unable to control your blaadder why on earth do they ask you to come with a full bladder? If you could do this you wouldn't be asking for their help!

Also they ask you to fill in numerous frequncy volume charts, you fill them in diligently - so that no one looks at them, they just get filed! No looking through them with the patient to see how they can improve the patient's situation.

Retesting is done with urodynamics when there is no evidence that they are effective in picking up problems anyway.

Residual volumes taken, told patient how much - then writes them down incorectly.

Also it doesn't seem to be a problem having higher residual volumes than the average functional bladder capacity...

Come on, this is crazy. Having a permanent feeling of wanting to go to the loo considered not to be a problem? Shall I go on, or just slit my wrists now? My experience was completely and utterly rubbish.

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Responses

Response from Mid Cheshire Hospitals NHS Foundation Trust 16 years ago
Mid Cheshire Hospitals NHS Foundation Trust

Submitted on 26/07/2007 at 15:45

Thank you for your story. Urodynamics is a diagnostic test that urologists use to assess the bladder function. Typically patients are asked to attend with a full bladder to assess their urinary flow. However we do understand that many patients find this difficult and we do advise patients that drinks are available in the waiting area so that patients can fill up their bladder on arrival.

Frequency volume charts are used to assess the patient’s functional bladder capacity by the person performing the urodynamic test. Patients can have a larger residual volume than their typical functional bladder capacity; however it is difficult to comment on individual case without having further information.

Having a permanent feeling of wanting to go to the toilet is distressing for the individual. There are a number of investigations and treatments available once a diagnosis has been made following urodynamics investigations.

As a result of your observations and comments we are reviewing the information sent to patients for Urodynamics, and will ensure information sent to patients attending for this test, acknowleges the discomfort this test may cause and advice available. We do involve patients when we update informaton and would invite you to comment on a draft leaflet if you would like to contact the Patient Information Co-ordinator telephone 01270 255141 ext 3104.

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