"My wife has Ehlers Danlos syndrome"
Posted by Dark angel (as ),
My Wife has been left to suffer in severe pain due to no specialists in our area dealing with her condition.
The GP is doing her best but is limited, most of the time they don't know where to sent her for care. She gets passed about and gets no further forward.
My wife has been to A & E at least ten times this year. She is now at the point of suicide.
I feel that the NHS is failing its duty of care to most EDS patients as this seems to be a common problem.