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diagnosed with breast cancer

Story from nhs.uk

"diagnosed with breast cancer"

About: Lincoln County Hospital

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I was booked in for a mastectomy on the 14th February 2013, I felt it was happening to some-one else not me. I stayed in a ward with 4 beds in the Maternity Unit, which meant I had nothing in common with the other 3 people on the ward who were in for urine infections being 3/4 months pregnant. I stayed in for approx. a week until my drain had finished draining. I had no quibble with the treatment I received from the nursing staff, Doctors, and enjoyed the food. I just felt out on a limb with no one to share the experience with. I had an appointment 6 weeks after with the Consultant who discussed my options. The Oncologist said I would not need radical treatment just a course of Letrozole for 5 years. I was due for another appointment in August but we had moved back to Norfolk by then and I cancelled it and asked my G.P. to try and make me an appointment locally. Not the best idea, as the hospital I was now with had not got any notes re my operation so was told to come back in January 2014 when hopefully my notes would have arrived. I am still on that limb with no-one to talk to about any worries or even some-one suffering the same position as me - that is having had a recent mastectomy. It's quite lonely out there. Linda

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Responses

Response from Jennie Negus, Head of Patient Experience, United Lincolnshire Hospitals NHS Trust 10 years ago
Jennie Negus
Head of Patient Experience,
United Lincolnshire Hospitals NHS Trust

Submitted on 15/10/2013 at 16:38
Published on Care Opinion at 19:37

picture of Jennie Negus

Dear Linda - your posting was simply heart-breaking to read.....particularly your closing words.....whilst I was pleased to hear that your care at Lincoln County was good I am sorry that since you moved you have had such a difficult time.

Clearly the practicalities of moving can cause some challenges - however I cant believe it will take until January for us to send through your notes. If you could contact me directly at: jennie.negus@ulh.nhs.uk with some more personal details and who your GP and new hospital consultant are I will do all I can to ensure they get the information quickly.

In the meantime though I think you need some support - someone to talk to....if you call Macmillan on 0808 808 0000 they will be able to put you in touch with support local to you - and their website at: www.macmillan.org.uk is also really helpful.

You don’t need to be alone out there Linda - you just need to know who is there to be with you...... Jennie

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Response from Lincoln County Hospital 10 years ago
Lincoln County Hospital

Submitted on 19/12/2013 at 12:23
Published on nhs.uk on 20/12/2013 at 03:00

Dear Linda - your posting was simply heart-breaking to read.....particularly your closing words.....whilst I was pleased to hear that your care at Lincoln County was good I am sorry that since you moved you have had such a difficult time. I have also realised that whilst I responded quite quickly to your story via Patient Opinion the response did not get transcribed onto NHS Choices for some reason (I have asked them to look into this) so I am sorry if this reply appears so late. Clearly the practicalities of moving can cause some challenges - however I cant believe it will take until January for us to send through your notes. If you could contact me directly at: jennie.negus@ulh.nhs.uk with some more personal details and who your GP and new hospital consultant are I will do all I can to ensure they get the information quickly. In the meantime though I think you need some support - someone to talk to....if you call Macmillan on 0808 808 0000 they will be able to put you in touch with support local to you - and their website at: www.macmillan.org.uk is also really helpful. You don’t need to be alone out there Linda - you just need to know who is there to be with you...... Jennie

  • {{helpful}} {{helpful == 1 ? "person thinks" : "people think"}} this response is helpful
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