"Diagnosis and the treatment once diagnosed"

About: St Lukes Hospital / Rheumatology

(as the patient),

It took 9 months to diagnose even though ALL the symptoms were pointing to RA.

My treatment at ST Lukes hospital in Bradford for the last 2 years has been very poor. I have seen a consultant twice, I can not get through on the advice line, when I have it has taken 3 weeks to speak to someone but I am never offered an app, just to turn up and a nurse will give me a steroid injection.

I feel on my own and unsupported. I have had to cry down the phone to be seen by a specialist nurse.

They just say they are very busy and I will have to persevere.

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Responses

Response from Shelley Bailey, Assistant Chief Nurse, Bradford Royal Infirmary

Thank you for your comments, they have been passed onto the team of Specialist nurses and the Matron for Rheumatology. We are so sorry that you have struggled to get the support you need from the team. If you are still not able to access care easily, you could contact the Patient Advisory Liaison Service (PALS) on 01274-364021 who will be able to assist you. Please accept our sincere apologies - we hope things will improve for you in the future.

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Response from St Lukes Hospital

Thank you for taking the time to comment on the care you received. We are so sorry that you have struggled to access the support you require. Your comments have been passed on to the Specialist nurses and the Matron for Rheumatology. If there has been no improvement in your support you could contact the Patient Advisory Liaison Service (PALS) on 01274-364021 who will be able to help you further. We sincerely hope things improve for you.

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Response from Daniela Boyd-Waters, Media and Communications Officer, National Rheumatoid Arthritis Society (NRAS)

Dear Lizziebrush,

We are sorry to hear of the difficulties you are currently experiencing. The National Rheumatoid Arthritis Society (NRAS) provide information, advocacy and support to people living with or affected by RA.

We have a helpline team who are excellent at providing people with up to date information. The team can provide emotional support especially for those going through a difficult time and help people understand more about the disease and the treatments available.

You can contact the helpline by telephone (free from landlines) on 0800 298 7650. The helpline is open Monday - Friday between 9.30am and 4.30pm. If you would rather email, please contact helpline@nras.org.uk

We do hope things improve for you.

Daniela

NRAS

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