In their words: What patients think about our NHS

by Sarah 9. March 2011 11:31

It is two weeks after we switched the site over and things are settling in nicely at Patient Opinion.

To mark the release of the upgraded site we created a report that evaluated the issues that concern patients/service users on Patient Opinion the most.

The report looked at a sample of over 500 postings rated critical by Patient Opinion (n.b 79% of all postings on Patient Opinion includes at least one positive aspect of their experience). Read and download In their words: What patients think about our NHS

Printed versions of our report -in their words: what patients think about the NHS

The aim of the report was to uncover the top issues raised by patients on the site. We wanted to quantify patient stories that have so far gone unheard or have been dismissed as too anecdotal. We think that data is no substitute for patient voice and we do mot want to oversimplify the postings on Patient Opinion but we hope this report would go some way to bridge the gap between data and stories.

In their words: What patients think about our NHS is the first report of it’s kind Patient Opinion has undertaken and was covered in a number of placing including the Guardian and the nursing times.

The Daily Mail picked up on the more negative aspects of the report and this article was responded to on the Primly Stable blog with a post titled "Only telling half of the story".

Finally, if you want more information on our methodology you can find this here

Tags:

Maternity | NHS | Voice

One thousand experiences of maternity care

by James 19. November 2009 09:46

Next week I'm off to talk to commissioners of maternity services about online feedback from users of the services they commission.

Maternity care is one of those parts of health care where "clinical outcomes" are vital but usually OK, and "experiential outcomes" sometimes forgotten. I've blogged before on what women have said on Patient Opinion about their care.

So I thought it might be interesting to construct a quick Wordle of the 1,000 odd comments on maternity care that we can find on both Patient Opinion and NHS Choices. And here it is.

words used in stories about maternity

Tags: , , ,

Maternity

Maternity care isn't delivering

by James 4. September 2008 22:43

Yesterday the London Evening Standard ran a story on the "nightmare" of maternity care in London, prompted by stories women have shared on Patient Opinion about their bad experiences of giving birth.

For example, Maree calls her experience of childbirth "terrifying, confusing and demeaning". Anonymous 2 found "the showers were flithy and paint was peeling off the wall" where she gave birth. Anon reported "cockroaches in the communal eating area". And today on Patient Opinion, Sam told how she feels that her experience has left her not with post-natal depression, but with post traumatic stress disorder.

To be sure, we hear plenty of stories of extraordinary care too. Often, these too will move us to tears.

But that's not the point. The point is that plenty of women are saying, very clearly and courageously, that their experience simply wasn't good enough - and, in some cases, was actually harmful.

The point is: 15 years after the Changing Childbirth report, surely we can do better than this?

Tags: ,

Maternity

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Share your story

If you've experienced health care recently, either as a patient yourself or as a carer or friend of someone else, please tell us how it was.

What was good? What could have been better?

Do visit our main site Patient Opinion to share your story. Alternatively you can ring us on 0800 122 3135 and share your story with one of our team over the phone in confidence.

 

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